[QUOTE=caliTJ;343518]Hi, I have been searching the web for PN info and looking for an online community. After finding your board here, I have been pouring through the threads and it is relieving (sadly) to hear such familiar struggles. It brings comfort to know that I am not alone.

I was diagnosed with Fibromyalgia when my son was born in '05. That diagnosis never sat well with me. My symptoms just didn't seem to fit. We are under an HMO and I gave up searching for relief after feeling I was sounding like a hypochondriac to my docs.

Unfortunately my symptoms did subside here and there and now are back much worse. I finally cornered my doc and asked him to think outside the box and try to "rediagnose" me. And now I sit with a PN diagnosis. I have a battery of more tests scheduled, so I won't know more for a bit on what type or what extent the neural damage is.


caliTJ -

I can say that I do understand your sadness. My PN only started 3 months ago but already I can see significant changes in the way I function every day. My husband is an avid college footbal fan and there is one school in particular that we go to many of the games. My husband is so excited and making plans for these games. "We'll go to this game and then we'll go there, he says. I feel so broken hearted as he refuses to except that I can't go and do all the long, long walking this is required to get to the games.