Hi Di, thanks for Emily's contact info! a talk with Dr T would be cool! I think about you and De often. "pioneers"
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pressure on the chest wall in breathing and the symptoms of the breast bone and radiating pain. he can decide if it is that or if it is the costoclavicular nerves perhaps being pulled in adhesions, scar matter,under the armpit.
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I have already had a phone consult with Dr. A regarding what I'm feeling. We both know we aren't shooting for 'recovery', just maintenance. The way he explained it was: I have a car parked out in the woods, and a tree fell on the car about 38 years ago. Dr. A took the tree off the car, but the car may not 'run' again. He seems to think nerve entrapment/injury and recommended neuro modulation, dantrium and an NSAID like arthrotec. I figured this coupled with blocks as needed and continued stretching/heat/ice I could manage it.
I may seem stubborn about refusing a SCM implant or nerve oblation... but I'm trying all conservative means first. A medication pump would be neat, if it wasn't a permanent implant. But topicals and patches would be tried first I think.
Our hope was to find someone locally who can do this. The c-spine isues were a surprise to me, just found that out 2 weeks ago. I'm waiting for a letter from Dr. A explaining the thoracic issues, so I can give to ER, PM, etc. I was told if i couldn't find someone locally, I could go back to Denver for blocks (Western Pain Mgmt).
thanks for helping me think this out!
