Funny. When I first had problems my H decided that after I had trouble getting up after an outdoor concert in the late summer that I wasn't going to walk around the fairgrounds with everyone. I got PO'd and stormed off after telling him and everyone else with us who didn't say, why can't she decide for herself, that I wasn't a cripple, wasn't going to let them treat me like a bad 2 year old, and that I could make my OWN decisions. I didn't want to be seen as a problem with a person.

So yeah, I hear you. I guess you gotta remind people that you are YOU. And maybe one day you'll find people who (like us) accept you for YOU and not your assistive devices, speech impediments, and lovely drunken sailor walk. (although I can assure you those are probably ALL highly attractive features--kind of like accessories on a new car, only better )

You've never heard me talk.


I was too. I was po'd at everything and anyone. That slowly went away when I realized that I was just po'd at being unable to control any of it and that my body, the only thing I could control for my whole life, had betrayed me. Then I was po'd at the disease and not everyone else. But it took a bit. Part of my problem was that people around me didn't understand and didn't seem like they wanted to try to understand.


I would be too if I had a kid with MS.

It's the little things that I DO take for granted--going up a stairs, walking, or talking--that get me when they don't work right. Yes. I'm with you on that!

You never know. Our SallyC can be a pretty tricky little gal!