Hello, Erin
Thymectomy is my last option, said my neuro.
I´m on azathioprine (Imuran), corticoid, mestinon, was on CY, now I'm going to cyclosporine...
The cyclophosphamide therapy was good in some sense, the crisis are not too severe last two months. But the side effects of this drug are something I want to forget. I felt as my body was burning inside my blood...
I would like to know if someone is taking cyclosporine and how is he/she doing.
Today I'm in a better mood than yesterday. I was diagnosed on September 2006 and since then, the disease didn't stop the progression. At first was just legs, arms and hands. Then the eyes and the swallowing and chewing troubles, the head dropping, the respiratory signs.
I'm desperate for remission too. I would love to swimm again...
I hope your remission could be with you soon!
Take care you too!
bluestone