Hello and Welcome to Neurotalk - you will find many great people here!!

I am so sorry to hear about everything that you have and are going through

I have CRPS/RSD in my left leg and right arm - I got CRPS when I was 12 years old (I am now 13). I also suffer from severe spasms in the whole of my left leg from my hip downwards and when my arm is in a bad flare my arm will close into a fist without me being able to move it at all.

My Pain Management Doctor and Neurologist diagnosed me with Dystonia and Myoclonus which are both complications of RSD. I have spoken to quite a few people who have CRPS and Dystonia, however I haven't spoken to that many people who have Myocoluns as well. I was told that the Myocolonus is a sudden jerk in a limb.

Here's a few video's of the spasms I am experiencing in my leg - you can see that my foot is rotated which is the Dystonia and the horrible, wild shaking is the Myoclonus:
http://www.youtube.com/watch?v=xIXakErNBpE
http://www.youtube.com/watch?v=qE_OwuilOew

I have been on several muscle relaxants including Baclofen, Kenadrin, Propranolol and Diazepam but unfortunatley non of them helped me. I have just undergone a 3 week intense Physical Therapy program and the spasms have reduced ever so slightly although they are no where near fully gone.

Are you on any muscle relaxants at the moment? I know of quite a few members who have been on muscle relaxants and they have worked well for them.

I understand how scary it is and if you ever want to talk I am here for you.

Pain free hugs
Alison