Thank you for the replies so far. I am not on any medication yet for these movement problems. Until the process of going through various further neurological tests has been completed, nobody is prepared to prescribe anything even for symptomatic relief. I have no issue with this - if there is something else wrong I would want to know. Although it is really tiring, until the right tests are all done by my neurologist to rule any other conditions in or out I can wait - it doesn't help if symptoms are masked by drugs.

I am interested to understand why docs (including one so-called CRPS specialist) can say that its not possible for CRPS to cause such severe or widespread movement problems when it seems to me that there is both reputable, published medical and annecdotal evidence to say that it can.

That is why I am so keen to hear from anyone else with expericence of such severe and widespread problems where they either believe or have been told that CRPS is responsible. It makes you feel as though you are going mad when they seem to want to ignore the possiblity in spite of the evidence out there.

It would be nice if they could get a move on with the testing right enough!!!