Thread: Tysabri Information & Check In
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Old 08-14-2008, 04:16 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default #17 down
Had # 17 yesterday. The usual, no problems, no concerns.

Still had the pinpoint itching with no rash or any other reaction, despite the 25 mg of diphenhydramine (benadryl). We are now leaning towards it being a superficial reaction to the cleaner used to disinfect the chair or something. I am determined to get to the bottom of it, so next infusion, it's long pants and long sleeves!

Still haven't added the baclofen and tizanidine back into daily meds. I've had one or two doses of each since 7/22, during the great salmonella smackdown. Minimal doses of provigil added back p.r.n with the blessing of the doc, but NOWHERE near the dose I was taking! I'm going to try to stay off all that I can, just to get a better assessment of where I am at now, and add back as needed.

Hope everyone is doing well!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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