Magnate
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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Magnate
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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How about a place to help us learn...
not to advocate per se, but to interact with advocacy organizations [some of whom aren't' usually responsive to 'constituencies' or non-members on HOW WE CAN ADVOCATE our own issues effectively. Be it in the immediate-doc to patient, anciliary staff to patient, patients to community, patients to drug and insurance resources, and patients to state and national representatives.
Sort of maybe, a guest 'speaker' kind of thing? Examples could be'Week one-q&a w/real docs on how to better answer questions they ask? how to know what questions WE should ask, when to be an agressive self-advocate and how to be effective doing so?
On the community, state and national levels -what reps see and hear, and what they would like to hear and are there more impressive formats for us to press our cases?
Well, you get the idea. We all represent many individual and group needs, by condition, but, there are also broader areas we can and should speak up in. We, I believe just need to know the key hows... Most of us are smart enough to go in the right directions. The right way to do it best makes all happier.
I'm not talking pure political here, but so many of us are dependent on subsidy either thru the governments or insurances, that we, being an expensive minority are especially, life threateningly, vulnerable.
Thanks! - j
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