A good psychologist with experience helping people with chronic illness would be extremely helpful. Seeing a therapist does not mean a person has a mental illness. A good therapist gives you a person to talk to with whom you do not have to consider their feelings .You can freely express yourself, your fears, sadness, rage and hope. Also through this process you may discover things you did not know and even come up with new ways of coping. A good therapist can help you learn better ways of communicating your needs and describing your pain to doctors. I am not saying your problems with doctors are in any way your fault! Its a shame they don't know how to listen.
Its hard to describe how helpful it is to have a person to talk with who is just going to help you, listen to you, advise and counsel you and never judge you.
You may also learn ways to lower your pain a few degrees. Stress is a component of all pain, it makes pain worse, as does anxiety, muscle tension.I'm referring to the normal anxiety and stress all people feel who have pain or illness . There are hormones released during stress that increase our pain.