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Originally Posted by Vonn07
... all because I have a disease I didn't ask for and because my doctors don't want me returning to work!! and I'm the one caught in the middle just waiting ...
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Vonn
What is the reason your doctors do not want you to work? I don't mean to be hard on you here. Really, I don't. But sometimes you just can't listen to everything that the doctors say. And they should not be saying some of the things that they say because they are too far removed from the real world.
Even before I was diagnosed with MS, I have had doctors telling me I should not be doing a variety of things, including work. I asked them if I continued to work or to mop the floor or do some lifting, would that hasten along the grim reaper? Of course, it wouldn't. Okay, then.....
I mean really, who do they think is going to do these things for me? The cabana boy who cleans the pool?
Just last month, my MS neuro expressed surprise that, given my condition, I was still working. I came right out and asked him if he was willing to contribute to my finances.
I know that it would be easier on me not to work. There are days that I pray to God just to let me get across the street, up 4 floors, down 2 halls and to my desk.
But I have to work. Period. That's it. I am the one who carries the health insurance. The idea of me not working is not even in the equation.
As long as I am ambulatory or have a great scooter and as long as I have enough of my faculties to get by, I will be working. There's no choice.
I know the day will come when I absolutely cannot work and it scares me to no end but until then.....
Trust me, I cry alot too. But, if you are able to get a non-profit organization up and running, then there should be something that you could do at least part time. I think it would do you a world of good, especially for your mental health.
Okay, enough preaching. I just worry about you and I think you are much more capable than some of your doctors have led you to believe.
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Originally Posted by SandyC
Vonn, I missed your post somehow. I am so sorry and wish there was something we could do. Don't you have a friend who will drive you there? I don't understand why it's so far but I think whatever happens they need to get you in fast.
Speaking of which. Renee, is it possible to call SSDI and ask them to let one of their docs re-evaluate you? I think it's so unfair to make you wait for them to get the judges report. That is not your fault that he's slacking or they are slacking.
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Sandy, unfortunately, it doesn't work like that and yes, it is not fair. It's been my experience that the more a person calls SS, the more harm he/she does.
To the extent that anyone calls, I believe it should be the attorney. They tend to listen to an attorney more. (And Vonn, you DO have an attorney, DON'T you?)
The SSA cannot help Renee right now. Her case is at the Appeals Council. If she is lucky, she will either win or her case will be remanded but there is not any new evidence that can be submitted. Her attorney should have written an appeal to go along with the forms that have to be submitted. The council uses the evidence, transcript and notice of the ALJ from the first hearing and the attorney's appeal to make their decision.
Sometimes we have had the decision in a couple of months and just recently, we received the Appeals Council's decision right over the two year anniversary! There's really no rhyme or reason.
Anyway, I certainly wish everyone luck and they get favorable decisions and benefits quickly!