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Old 08-17-2008, 08:45 AM
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CayoKay CayoKay is offline
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CayoKay CayoKay is offline
Fabulous Belizean Member
CayoKay's Avatar
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
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Laura, I got it first time deep in my right ear, like an icepick stabbing.

thought it was Otitis Media (ear infection) but ENT-guy (ear/nose/throat) said nope, no inflamation.

so, I thought maybe TMJ, but dentist said no, and no teeth problems either.

so, finally went to neuro, and by then, zings and throbs had spread, intermittently to upper cheekbones, behind ear, temples, and sometimes even by my nose.

neuro explained it was the Trigeminal Nerve, and showed me a diagram of the nerve and its branches, which matched up with the pain almost perfectly.

he told me that getting pain on both sides wasn't common, but he'd seen it before.

not usually on both sides at the same time, it seems to take turns, and he said it was due to a lesion in the "pons" area, I think.

anyway, after 20 years of MS, I gotta say, it's my LEAST favorite symptom, because I never know when it's gonna REAR its UGLY head, and take my breath away with the sudden sharpness of agony.

Butalbital (generic name for Fioricet) helps some, at least it dulls the pain.

hugs, and hope you and your doc figure out what's going on with you.
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"Thanks for this!" says:
dmplaura (08-17-2008)