Originally Posted by Karen Gray

Hello,

My name is Karen Gray My Son was diagnosed with Erythromyalgia 20 years ago....he was 7 years old. Our experience was very similar to yours. We were sent to Children's hospital in Birmingham Alabama. They were bringing in doctors by the droves....and were telling my husband and me that our son had mental problems and he was having a psychosomatic disorder as well. I begged for a Neurologist and he came in and had read an article a few weeks earlier on Erythromyalgia. I told him that the only relief we were getting was for Kenny to soak in hands and feet in cold ice water. He came back a few hours later with the article and 3 other doctors. They knew it was Erythromyalgia but did not know how to treat it. After several bizarre tests and experimental drugs my husband and I were begging our family doctor to get us out of the hospital so that I could find treatment for our son. It was a process but we finally did get released. We found a doctor in Tuscaloosa, Alabama and immediately told me that all Kenny needed was a steroid. We put him on steroids and in two months he was completely back to normal.
If you want to talk to me personally please send me a number where you can reached to and I will be happy to talk to you. I will certainly keep your daughter in my prayers.

Karen Gray