Originally Posted by HiHo

Yes, indeed they put another vas cath in. This one is going to stay this time. the surgeons were not real happy that neuro had pulled it before we left last time. So this time it stays, at least for a few months to make sure he isn't gonna need it. He had something a little different this time. When he came outta surgery for the vas cath, the renal docs wanted to immediately begin his pheresis, so they left him intubated and sent him straight to PICU to do his first pheresis. Dallas was not happy at all waking up with that tube in. It took about 3 hours and then they pulled the tube. He was one honked off little man! He even attempted to pull the tube out himself. I don't blame him. Anyway, he has had 2 treatments now and has 3 more this week. Already feeling a lot stronger than before! Pheresis just does such great things for him. I wish you had the same results. He feels like conquering the world when it is all over! Anyway, 5 more days here and hopefully we will go home after that. The docs are sure that his thyroid was the culprit for his exacerbation this time. We didn't realize, but when he was being pheresed before it was completely wiping his synthroid (thyroid pill) out of his body. So by the time we got home, he had not thyroid left and went completely hypothyroid and that caused an exacerbation of his myasthenia. How crazy, so now he receives a massive thyroid dose and we wait until after he is pheresed in the day to give it to him. Oh well, you live and learn. What's important is we now know and he is feeling better. Talk to you soon...Heidi