Thanks to everyone!

Twink - Love the quote - I'll have to keep that in mind but my aim is not so hot

Erin - My vertigo started with my eyes. I felt them becoming less able to focus and moving strangely first. Then, my head started spinning. I have had sensations lke you described and my neuro called it oscillopsia and I actually get that from time to time as one of my "normal" symptoms, but for me that is far more fleeting than the vertigo that lasts.

MSacorn - Yes, good hubby bad lights! Fluroescent lights are my nemesis and have been for a long time. A lot of the time I work in the dark. I really think I need to beg for an LCD monitor, too.

Yeahbut - Doing better but eyes are still funny. I hope it doesn't come back as bad as the other day. The only thing I can think of is that I was really tired, so everything was magnified.

Tkrik - I have read about the Valium helping. Interestingly enough, when I had a lot of problems with this a few years back, the neuro put me on Klonipin (also a benzo like Valium) to help with the nystagmus. I hope your DD is doing better. I have had the immobilizing vertigo before and had it last, so I know how bad she feels.

Jowen - You and I must be sisters! When I had this before, it lasted a long time. Not as long as you, but several weeks and then it became more of a low level thing for months until it went away. The first week of it back then, I was crawling around the house because I couldn't really stand up. That led to many tests to determine that it was not vestibular and that it was from the brain which led to more tests for MS. Apparently, the form of nystagmus that I have is pretty specific for being brain related.


It has been about a year and a half since my last IVSM treatment and as much as I hate the stuff, I was longing for some the other day! I feel all kinds of things creeping in now. This was just the worst one. I still don't feel like I'm back to my normal, but I don't feel as bad as the other day.

I don't see my neuro until October, but I guess I can try to work up the courage to go and get in to see the opth in the mean time. I just hate to have my eyes dilated. He also always acts so sorry for me. He always says there is nothing he can do to fix it because it is brain related. Makes me feel kind of hopeless!