I agree with Todd wholeheartedly! I have tried to say the same, in a different way, but fell on deaf ears...or so it seemed to me.
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Todd said: I still strongly believe that the first positive step in the right direction is for us to push the orgs to come together and create a unified public marketing campaign to create much needed exposure for our disease. With increased public awareness comes increased public support, both financially and politically, and that benefits everyone involved.
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But, having said that, knowing that the orgs have attempted joining in the past, I don't see that happening in the future, no matter how loud we all shout for that unity.