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Senior Member
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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posted by jeanb:
"An independent group as liaison - pwp not tied to or funded by the orgs."
that's the point of the organizing we're doing on the other thread - a unified patient voice to wield influence.
I think that needs to happen before what Todd is asking can happen.
we're talking in circles!
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Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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