we need to organize and make some noise, then the orgs will either be with us or under our wheels.........
This whole thread has been talked to death. We can do ALL the things we have discussed here, its a question if we want to!
I want to get organized and get the NIH to fund the research we need to do to find a cure for this damned disease.
This is not rocket science folks!! Let organize and get to work!! Organizing is the FIRST thing we have to do or everything else is a moot point!!

Charlie