Well, I'm getting no where fast trying to figure this out.

Thanks for the reply Billye.

My daughter had another seizure around 2am. I stayed up all night long watching her. At 8:30am, I called her seizure specialist. I got the standard "I'll give the note to the nurse, she will call you back"
I explained that this was out of the ordinary and I need to know something now.
Another seizure around noon.

Nurse calls me back after lunch and tells me the neuro said it was probably break through seizures due to the sinus infection. (yeah right)If I could have spoken with the doctor I doubt that would have been his answer.

I had also called the Rheumy doc that rx'd the methotrexate. Of course he's on vacation this week. His nurse would call me back.

She did call back and said she thought it was probably one of the meds.
She explained that the doc was on vacation but she would be calling him and either she or he would call me back.

She suggested if she has any more seizures to go ahead and take her to the ER.

I waited till 4:40pm and called back. Got the receptionist who wouldn't check with the nurse to see if she had heard anything from the doc. Just gave me the standard spill that she would call back when she heard from the doc.

Well, now It's 8:21pm and I still don't know anymore than I did yesterday.

Holly(my daughter) her head hurts. Migraine. I'm afraid to give her anything because it will just lower her threshold more. If I take her to the ER, they wont do anything expect tell me to get with her specialist in the morning.
Then they will want to give her a shot for her head. Which would make her head quit hurting, but would lower her seizure threshold more.

I guess I will be up all night again tonight watching her. I try to sleep, but every noise I jump up thinking it's her.
I'll call again to the Rheumy's office tomorrow. If they cannot give me an answer, I'll see if there is someone I could take her too.

I cannot believe her seizure doc just blew this off as the sinus infection.

I'll call the ENT then. See what he as to say.

After that, I have no clue.

I've held off on giving her any more of these new meds today. Not sure which is causing this. Whatever it is, I don't want her to have anymore.

I'm tired, Cranky and getting a migraine myself.

DAY