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Old 08-21-2008, 04:56 AM
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Aussie99 Aussie99 is offline
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Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Aussie99 Aussie99 is offline
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Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
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Quote:
Originally Posted by savannah View Post
Aussie 99
How did they decide you had auto immune PN?
I apologise it took me so long to reply.

My diagnosis was really a process of elimination. Meaning I was tested for alot of things, including autonomic testing and also NCS's but everything came back normal. My ESR was always high. Through a careful history and also the progression of the illness it pointed to a monophasic generalised sensory motor neuropathy as a result of molecular mimicry. I don't have empirical evidence... but it fits. My neurologist is a small fibre/autonomic specialist.

I also aquired other vague illnesses that came and went after my onset of PN that are also considered autoimmune such as CFS,fibromyalgia,hypersensitivity, and also chemical sensetivity. I have my good days and I have my bad days. It takes 3-4 years for the human body to replace all the cells and blood. (I read this). So I reckon, another couple years I'll have been replaced twice. I should feel pretty good by then.
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