Those are "new developments" (appetite and timing of taking the LDN) that I've heard of previously, but never had confirmation on, Kelly.

As far as "forgetting to eat", that is an MS thing for me anyway, and was for years before I started on LDN. I had to smoke mj for a couple of years BEFORE I got on LDN, as that was the only way I'd want or remember to eat (as well as to help me sleep). Unfortunately, I didn't lose any weight though (when relying on mj), cause I was on antidepressants which caused me to retain weight, and because the only time I would eat was when I smoked the mj just before I went to bed. Then I'd get the munchies . . . and the rest is history. .

When I got on LDN, I was eventually able to drop the mj and antidepressants, and the weight just fell off me. I think I lost about 30 lbs in about 4 months because I was eating well for the first time in years.

Perhaps they are finding that some people are just feeling so much better with LDN, and they are now able to tune out the hunger. I don't know . . .

The part about just taking LDN any time in the evening is something I've heard of some people trying, especially when they worked/slept weird hours. I guess there's enough people on it now that they know it works even if it isn't taken after 9:00 pm. I'm sticking to my routine though, cause it's been working so far.

CONGRATULATIONS on getting the rx. I sure hope it helps you for symptoms too, because when it doesn't so much for some people, it can be discouraging. That doesn't mean it isn't helping the disease process though . . . and only time will tell that.

Plan on giving it 9 months to a year, at between 3.0 mg and 4.5 mg, so long as you are doing as good as you are now, or better. Of course, if you end up not at least stabilizing (WHICH I DOUBT), then you might need to make another decision (or add Copaxone).

Cherie