My doctor is tired of me pushing for a diagnosis (one year PN) but I feel very strongly that treating symptoms is not the same as knowing what's wrong and being able to try to get treatment for the disorder. with all the new developments in medicine how would we know what will help if we don't know what is wrong.
And be careful, after my insisting on continuing to hunt for a diagnosis she said I had PN and chronic fatigue syndrome. Wow that was depressing. So I went to the CDC and looked up CFS.
I quickly learned I DO NOT have CFS as you have to have certain symptoms, 4 out of 8 and I have one- fatigue.
I am so disappointed in this doctor but it made my day to find out I don't have CFS.
It sucks that we have to become researchers . Thank god for the internet!