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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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Fran,
MCTD, Mixed Connective Tissue Disease, has many of the components that you have mentioned, including Sjogren's, Raynauds, Esophagus issues, and neuropathy, myopathy etc, and tends not to have a lot of positive blood tests to show for it. Connective Tissue Disease is a bear to have diagnosed, and treatment options are somewhat limited. After I had run out of options, I was finally diagnosed after review of very old pathology slides combined with new information.
My journey has taken 10 years since the 'very old pathology slide' was taken. That does not count the decade prior to that when 'I told them I was sick'. Hang in, the truth is out there. Oh, one thing, with Connective Tissue Diseases, the 'truth' does change with each doc, each test etc. (We used to call those things, mistakes, white lies or down right pathological lies-but we won't get into any of that.) Your symptoms smack of autoimmune disease and the way it is diagnosed depends on the very fickle science of rheumatology, and the very elusive results of tests we have.
Something will show eventually. I won't tell you to hang in there, you have heard that before. It is difficult, but, take what joy you can from life, and keep looking, you will eventually find that answer. You may PM me if you like...I check in every few days to read. Take care.
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