BTW, I just wanted to clarify what I meant in my last posting, about being i.e.: "65%", "90%", "30%" normal at certain periods along the way.

What I am really talking about by those percentages, is my personal assessment of my "Quality of Life", compared to before the event . . . NOT overall disability level.

There are lots of people who would have an ongoing EDSS of 7 or so (which I only ever got up to during the TM attack period), and they can still work. They use a wheelchair, or there job does not require certain abilities to perform . . . so they CAN stay in the workforce.

Someone else might only have fatigue and cognitive challenges as their debilitating symptoms (no other notable physical symptoms most of the time), and they CAN'T work because of those things.

Since being on LDN, I reduced my EDSS one whole point to 4.5. There are lots of people who can continue working with that disability level, and others who have to stop working at an EDSS of 2.0. It really depends on how disruptive the symptoms are (whether we can make it through the day without a long nap, etc.), and if we are having more regular relapses (dependability, etc.), that determines whether we can continue to work or not.

Cherie