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Member
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Join Date: Jul 2008
Location: MA, USA
Posts: 284
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Member
Join Date: Jul 2008
Location: MA, USA
Posts: 284
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Update
The Rheumatologists think I have Sarcoid, or another Inflammatory Auto-Immune disease, (based on the fact I had Erythema Nodosum, and Optic Neuritis, Swelling, And Blood tests that point them in that direction, like the Ced rate being elevated for 2 years now.) They still don't seem positive it is it, but based on history they seem to think it is probable. (And I am like, you couldn't have seen this last year when I saw you?) And they also think I have Fibromyalgia.
They are going to start treatment (can't do steroids, or don't want to because I had such massive doses because of the Optic Neuritis so they are going to try Methotrexate which they say won't help with the pain as damage has already been done. It makes me feel a little hopeless though. As they have tried almost everything on me for treatment for pain and nothing seems to work well...The steroids were wonderful though.) but are waiting to check in with my Neuro.
Idk. This is confusing. If anyone has any other ideas or suggestions I am still open!
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