I am in this boat too. At this point my dr's are like well you have enough history and enough symptoms to treat for X. So we are going to try it, even though we can't find it specifically in any of our tests. I was so relieved to hear that. It has been 1.5 years of being bounced from Dr. to Dr. trying to get a diagnosis. And all anyone would say was: "Well, you have x and y and z symptoms, but not q and s. So we don't want to randomly start treating for some disease or problem we might think you have but aren't sure of." It is so frustrating.

And it is so true that it is really much harder when you don't have a diagnosis, because not only do Dr's and other med. people think it is weird, but when you have to explain to your college why you are out sick, or your work you have to give them a list of symptoms and explain the whole thing just so they don't think you are faking.