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Originally Posted by lady_express_44
Cudos to you for apparently reading this entire thread, and then responding with your take on the various comments we’ve made.
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Not a problem, I didn't feel I could respond without reading the whole thread. I would have ended up responding 15 times.
Quote:
Originally Posted by lady_express_44
Is this the same friend that is on 25mg? What opiate based drugs are you referring to, that she required twice the dosage ~ do you mean anesthetic? Do you know what pain meds she used after the surgery, and did she stay on LDN while she was on the pain meds?
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Nope different person, sorry. This friend is on LDN for MS, she takes 4mg. (My other friend is on 25mg specifically for PTSD.) Fentanyl and Morphine were the two that my friend with MS required twice the dose on. She stopped the LDN 3 days before surgery and did not start it again until she was done with the pain meds.
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Originally Posted by lady_express_44
Do you mean LDN enhances your “normal” physical pain . . . but helps your MS neurological-type and spasticity pain? Is it possible that you notice the pain more because you don’t have any strong pain relief (opiate based) to rely on while on LDN?
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Yes that is what I mean. For example, my cramps are much more painful. My old shoulder and knee injuries from gymnastics are more painful. But my MS pain is almost non existent. If I get VERY stressed it comes back. I've learned to just take a Neurotin if I have to see my in laws, because I will need it.
My family has a huge history of drug addiction. Even before LDN I refused pain meds whenever possible. I didn't take any after my shoulder surgeries, once I left the hospital. So no, it has nothing to do with not having pain meds since I didn't have them before.
Quote:
Originally Posted by lady_express_44
Does Versed not work for you because of the LDN, or other reasons??
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Nobody knows why it didn't work, but it was before LDN. It was during the diagnostic process when they did a Transesophageal echocardiagram to make sure my heart was okay. The Versed didn't work. On top of that the numbing stuff they used caused me to flare. This also explained my flaring after root canals. Any numbing stuff in the "kane" family causes me to flare.
I had esophageal spasms for a few weeks and couldn't eat. Twink will remember that... I accompanied her to my favorite eating establishment in the WORLD and I couldn't eat because I couldn't swallow. I had periodic issues with the spasms after... but not since starting LDN. Bentyl is what I used that finally worked to calm them down.
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Originally Posted by lady_express_44
Do you have trouble with spasticity and cold? Every October I have to drop down about .75 to 1.0 mg when the cold comes (I am on liquid as well, so that’s no problem to do), then I get back up to 4.5 mg a few weeks later.?
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I started LDN in December and didn't have an issue. I don't like the cold but I dislike the heat much worse. I have always struggled with tolerating the heat.
Quote:
Originally Posted by lady_express_44
My cognitive issues are directly related to fatigue. I can do fairly well when I am rested, but when I get tired, my brain shuts down. ?
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My cognitive issues really are not that big of a deal, but they are to me. I won the spelling bee when I was like 10. Grammar and spelling has always been my strong point. Now it's not uncommon for me to mix up their and there... or spell something wrong that I KNOW how to spell. It's not a big deal, but it's like taking the ONE thing I was really good at away from me ya know?
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