Hey there! I was so excited to hear that your new neuro said that it sounds like you have MG! Maybe NOW you can get the treatment you deserve!
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Does your new doc have a course of action to help you along? I now know why my neuro did 5 days if IV IG right before my operation - that makes sense....I just thought he was being overzealous, but now I'm happy he made me go through it - they even kept my PICC in me over the weekend just so that they wouldn't have to place a new one in me the following Tuesday - my poor hubby had to make sure that the lines stayed clear (saline and heprin) but he was a champ
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-not for the squeamish! I pray that now you get the help you so desperately need!
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Erin
Quote:
Originally Posted by eeyore2
I've just gotten out of the hospital following a surgical j-tube placement...which was supposed to be a 1-d stay---turned into 1 week stay. I am now totally wiped, can't walk, can barely get out of bed...
I called my "new" neuro to get an opinion on what I should do (and reschedule an appoint for testing I had scheduled for Fri), and he was not at all surprised I crashed after what is considered a minor surgery...he said the "it sound's like you have MG". He said that it could take a week or 2 for the neuromusclular blocking agents used during surgery to washout.
This was just totally amazing to me..I went from being totally depressed that , once again I feel like crap and nobody has any idea what to or when/if things would improve, to being optimistic that once the drugs clear my system I should start felling better.
It is amazing how knowing the cause of the problem makes it so much easier to deal with...It still sucks though
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