I knew this was going to come up again, because I remember the long conversation we had about your relative, Cheryl. Since then, I've been trying to piece together an explanation that will make sense, in case we ever have to describe it again. I'll dig that up and see how far I got with it . . .

Basically:

"The nerve cells and other nervous structures in the body outside of the CNS are known as the peripheral nervous system (peripheral means outside). These nerves receive information from body tissues and the outside world and pass it along to the brain and spinal cord. These nerves also carry the signals from the CNS to make body parts move or function."

From what I recall, for us the damage is to the nerves that are serviced by the CNS, which include most of the 12 Cranial (brainstem) nerves, and the 31 Spinal cord nerves. The peripheral nerves are not damaged . . . the ones feeding them are.

I'll try to describe this in more detail when I find that Word document I was trying to prepare.

Do you have the link to the prior convo, Cheryl?

Cherie