A few thoughts from what I read here. That some people feel better because they find a treatment that works for them. For ex the right med. I think it is Dan but he tells a great story though I know he still suffers but how he found the fetnyl patch and it gave him a better quality of life.
I am a little different then most here though many of us are but anyhow a lot has happened with my health and symptoms from the start of this. Some has gotten better and then new things have appeared. I tend to worry so much about what else can happen or what may get worse like you said about walking etc. I am really working and this is easier said then done but staying in the present and getting through each day in the best I can. To be as proactive in life and my health. When I have my surgery I am going to do biofeedback again which I think everyone could benefit from. It is really hard not to worry but I do feel for me all the anxiety and fear really takes away from the quality of life and in some ways I may have to accept certain things for the next 50 or 60 years. Oy. Hang in there and I hope you feel better