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Member
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Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
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Member
Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
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Hi Cherie,
Well, the WORST of this was when I had the Pancreatitus, I have to say that since THEN I have improved 100%, my attack though seems to have leveled out, I HAVE been feeling better than in the beginning, my right hand didn't work at all but NOW it does, I had pain in my shoulder blade but NOW it has moved to my wrist but it is not constant, I HAD been numb from my chest down to my feet but NOW it has gone away and I have feeling again with only residual numbness there. I can actually FEEL the lesion on my C-3, when I bow my head I have buzzing in my arms. My right arm and hand is weak still also. This has all been the same all week with nothing changing, I hope this is all not the way it is going to stay but I know it is not because I know the lesions are still there and when they go away i assume so will these symptoms. That is the reason I want to start the TY soon to hopefully shrink the lesions, I will also bring up some Solumedrol to my neuro on the 15th. I know I am getting better but the improvements are small now and I AM getting frustrated with this all Cherie.......
I will be patient, I had a bad depressing day yesterday but I will bounce back I am sure.
Thanks again Cherie, yu are truly a Godsend....:-)
Joe
Quote:
Originally Posted by lady_express_44
Hi Joe,
Sorry to hear you are not feeling better this week. 
Every spinal lesion attack for me has started with some kind of infection. The first TM attack was a virus (with a BAD fever), the second was an untreated bladder -> kidney infection, and the third stir up was due to an untreated tooth infection. That particular infection lead me into a series of many infections, including bronchitis, bacterial, bladder . . . until finally I had the tooth pulled.
I imagine spinal lesions can act up for no particular reason too . . . that is just my experience.
If you have a copy of your employee booklet for your benefits, you should look up LTD benefits. Most any company that has STD coverage, is likely to have LTD as well (at least here in Canada).
I don't know much about SSI, but you might want to start a thread about that. I think I recall that there is 5 month period without benefits, and it can take several attempts and legal help to complete the process.
Well, some weeks we make good progress, and other weeks we make none. You are on week 8 now, so you should continue to make substantial improvement over the next 2- 4 weeks (that will be 10 - 12 weeks, all up). It really is amazing how much difference there can be in that short period.
Ultimately though Joe, there may be some permanent damage, including fatigue, bladder/bowels, numbness, burning, or whatever. We are not necessarily stuck with that forever though, as we continue to heal even more for up to two years.
I know you must be getting tired of this, but has there been some improvement overall, since the "worst" period?
Cherie |
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Dxd RRMS 12/23,06, Copaxone 2/07 to 9/07 - Rebif 10/07 to 7/08, BAD flare with Transverse Myelitis & Pancreatitis.....,9/08 Pseudo Cyst!!!! and another TM attack. Started Tysabri 9/22/08 - 10/21 Allergic reaction to Tysabri, SSDI Approved 11/14!! Continued Ty 11/17 with a Pre-medicate. Solumedral 12/11-12/13 Ty #5 Jan 12th!
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