Molly,
I can't imagine what you are going through. I was to a much smaller extent in the sme boat until my diagnosis of MG - no one really knew what was wrong with me until I'd lost almost 30 lbs and was unable to swallow/breathe - it was terrifying! But that was only for a few months - fortunately my MG saw what was going on and scheduled an appt with a fabulous neuro who diagnosed me within 5 min. Finally! I was on Mestinon that day, but did NOT really get better until I was put on steroids, and had an IV IG - the miracle liquid, ,blood, etc, .....MY antibody level was at 600 - normal (per my neuro) is
.04 - my body was so sick that it all started shutting down - heart, lungs, everything, and I was in the ICU for days on end - scary stuff - now I am able to work most days and take care of my hubby and gorgeous son - thank God! Anyway, please hang in there and let me know how you are!
Erin