Quote:
Originally Posted by JoeMac
Hi Cherie,
I didn't know about TY not doing anything for spinal lesions but I am getting scared now AGAIN........
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No Joe, not that Tysabri doesn't have the potential to have ANY positive affect . . . it just may be very limited when it comes to the spinal cord.
The goal of Tysabri and the CRABs (DMD's for RRMS) is to reduce new and transient inflammation, ie. "enhanced lesions". If this med helps with reducing inflammation (transient lesions), then theoretically there will be less immediate damage, and there
should be less T2/T1 (longer term) lesions that will form . . .
However, TM attacks are rare and very seldom occur again. People get some spinal lesion "activity", but it is usually much, much less severe then what we've experienced. So . . . concern over this level of future "active inflammation" really isn't so much of an issue anyway.
What those of us who've experienced this level of spinal lesion activity are left with collateral "damage" from the one attack we've had. There is nothing that Tysabri can do for that as it can not repair the myelin/axons that were damaged in our spine. At best, all that Tysabri can to do is potentially reduce further serious attacks of the spine . . . which as I said are very rare anyway.
(As I said before though, Tysabri may prove very helpful for the brain lesions though . . . .)
Quote:
Originally Posted by JoeMac
Yesterday I was at the hospital getting an MRI and for about 5 minutes I lost the use of my upper body, my arms just would not work, it was a weird thing but then as fast as things stopped, it all came back but very WEAKLY, my arms DID work but were so weak I was shaking just holding them up........I went had my MRI and then everything went back to the way I have been with just weakness and numbness, it was scary, I was just about paralyzed from the waist UP...........SO things are still screwed up.......I am thinking that I am never going to get back to normal, or is THIS my new normal??
Joe
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I've experienced that too, Joe. In fact I experienced a LOT of that with MOST of my lower body, with my first attack.
You are still healing, and your body will continue to have "short-circuits" while it looks for new routes ...
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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