Hi, Jan!
I'm glad to know that you feel comfortable to come around and soak up some support. We don't care whether you have a dx like ours, you're one of us now (my condolences) and like I've said before, you will always be one of us (please, no theatrics).
I agree with Frank & FG, you know that something isn't right and it's your body. Don't give up, the right doc is out there somewhere and he/she is equipped and willing to help you. Find that doc so you can get on with your life!
And, do me a favor, get yourself a good massage just for the sake of you.