Hi Cherie,
It is just that this past week things seem to be going bad with everything, financially also because of my neuro filing that paperwork too late. That is adding to things too. When i was first dignosed with MS i did research and even everyone on the boards always said spinal lesions were the debilitating ones, I was scared of them and glad that I didn't have them, but NOW my bigget fear has come onto ME.......
You have been one to keep me going through this, I am still very frightened of my outcome because of the way things have gone these past couple weeks, I hope that I can get on the Ty soon so that as my nerves find new routes the NEW routes do not collapse, know what I mean?
Thanks again Cherie
Joe
Quote:
Originally Posted by lady_express_44
No Joe, not that Tysabri doesn't have the potential to have ANY positive affect . . . it just may be very limited when it comes to the spinal cord.
The goal of Tysabri and the CRABs (DMD's for RRMS) is to reduce new and transient inflammation, ie. "enhanced lesions". If this med helps with reducing inflammation (transient lesions), then theoretically there will be less immediate damage, and there should be less T2/T1 (longer term) lesions that will form . . .
However, TM attacks are rare and very seldom occur again. People get some spinal lesion "activity", but it is usually much, much less severe then what we've experienced. So . . . concern over this level of future "active inflammation" really isn't so much of an issue anyway.
What those of us who've experienced this level of spinal lesion activity are left with collateral "damage" from the one attack we've had. There is nothing that Tysabri can do for that as it can not repair the myelin/axons that were damaged in our spine. At best, all that Tysabri can to do is potentially reduce further serious attacks of the spine . . . which as I said are very rare anyway. 
(As I said before though, Tysabri may prove very helpful for the brain lesions though . . . .)
I've experienced that too, Joe. In fact I experienced a LOT of that with MOST of my lower body, with my first attack.
You are still healing, and your body will continue to have "short-circuits" while it looks for new routes ...
Cherie |