Quote:
Originally Posted by marion06095
I have had some of the side effects from LDN. I do get mild hot flashes at night that are reminiscent of menopause. They aren’t awful or anything. Just an annoyance. I have not slept very well, but that is sort of standard for me. I am wondering if that might get better with time as has been noted by others.
As for improvements that I have noticed, I continue to be way less tremory in my hands/arms. I can tell that because I can now somewhat accurately “type” on my iPod touch, which was impossible before I started on LDN. I’d say that my manual dexterity has greatly improved. I also have not had any “internal shakes,” not even in the heat. This is a tremendous improvement. In the past when I’d get all shaky inside it’d almost feel to me like my whole body was screaming at the same time. This feeling has been replaced by an almost eerie calm at my very core.
Is the improvement all in my head? I suppose it could be, but I’ll take it! I expect that time will tell. I am thrilled with the improvement.
As for things that have not improved, yesterday was pretty painful for me. My standard areas of pain were aching away, so I guess I can say that LDN hasn’t impacted the neural pain – at least not yet. I have also had at least one day where I was sleepy all day. Perhaps my energy will get a bump next month when I get to up the dosage.
Howzabout you, other LDNers.
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Hi Marion,
The rushes/hot flashes were a transitory thing for me . . . I think I only got them for a week or two. It will be interesting to see if things level off for you when you get on 3.0mg for a while.
As far as sleeping, unless I've been sick, I've not slept more then 6 hrs in a row since being on LDN. I awake fully refreshed, and am good for about another 6 or 7 hrs. When I sleep in the afternoon (which is mandatory!), it's usually 2 - 3 hrs, and if I wake up before my body is ready, I don't feel refreshed. Sometimes all it takes is another 10 - 60 min, but I listen to the queues and go back to sleep until I wake up feeling good. (I've learned not to fight that because I will NEVER wake up if I don't just take the extra sleep I need).
I'm not sure if my sleeping patterns are related to the LDN, because I was very out-of-whack for years before going on LDN (slept for days, no sleep for days...). At least now I have a pattern, albeit a strange one.
The "calm to the core" feeling is what most people get, even if nothing else.
You are still at a very low dosage, so that you are seeing any improvement is great news.
The LDN was extremely helpful for my spasticity, but I don't think it's helped my neurological pain much (burning, sensitivity to touch, numbness, itchiness, etc.). It's hard to say because those sensations are intermittent anyway, and I've been on LDN so long that I don't know how things would be without it.
... time will tell.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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