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Old 08-31-2008, 08:19 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default lookingforacure.....

That's what we are trying to figure out - the answer to your question. It has been revealing thus far; but we can't wait for anyone else to do it for us. They are too slow.

Anyone reading with knowledge and skills will know our needs to pull this together.

or - DBS?

paula

Quote:
Originally Posted by lurkingforacure View Post
Scary. But how to tell the difference between muscle pain caused by the PD and muscle pain as a result of sinemet?

also, what can one do-there is no real alternative to levodopa that we know of. Mucuna, tried it, too inconsistent and unreliable (example: have an important meeting, need to be sure meds are working...not so sure if only using mucuna). Also over several days mucuna caused some major stomach aches. So what to do when the rx is the only one out there (and here I lump all Pd drugs in together, because many of them either have levodopa in them, or agents that act on levodopa). Suggestions?
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paula

"Time is not neutral for those who have pd or for those who will get it."
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