JUst wanted to see how you are feeling today? Things have been up/down here.......I keep praying for remission. What are your docs saying? Have you felt better recently? I'm really surprised that you haven't had a thymectomy - especially since your disease hasn't stopped it's progression. My doc had made me have one 1 month after my diagnosis, but I had gotten to the point to where it was endangering my life (basically everything you ar describing in your blog) - I mean there were no 2 ways about it. Every opinion I got told me that a thymectomy was my only option so I did it! Let me know how you are when you get a chance
Erin