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Old 09-01-2008, 10:11 PM
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Silverlady Silverlady is offline
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Join Date: Aug 2006
Location: Texas
Posts: 1,454
15 yr Member
Silverlady Silverlady is offline
Senior Member
Silverlady's Avatar
 
Join Date: Aug 2006
Location: Texas
Posts: 1,454
15 yr Member
Default individual opinion

This will probably be a biased mix based on personal opinion and treatment at both hospitals. My treatment at Mayo could not have been better. The only thing missing is the skin biopsy. The neuro there (Dr. Dyck) told me that he didn't want to do the sural nerve biopsy unless it was absolutely necessary. It wasn't. But I didn't get a skin biopsy. As it turned out it would have not done any good. I have rheumatoid arthritis and Sjogren's Syndrome. There is no cure for rheumatoid arthritis, only treatment. And there is really no treatment for Sjogren's Syndrome. A skin biopsy would not have made any difference in my treatment.

Mayo in Dec is horribly horribly cold. 14 below zero the day we got to Mayo. I really suffered from it. But Mayo is a teaching hospital and they start shutting down for the holidays early and not taking any new appts. I was told they could not see me at first and then a doctor whom I am friends with managed to say the magic words that got me in. Would I do it again? I probably would go just because we finally got the proof that will get thru whatever insurance loops I need to jump.

They did not miss any holes in my testing and it took all of it in order to put the story together. They also found an ulcer we did not know I had and put together a diet that kept me from starving to death.

The opinions you are going to get on the question you asked, are going to be very personalized. Would I do it again. I'm not sure. There is now a doctor specializing in autoimmune neurological disease at Hopkin. Now if I was able, I'd probably go to Hopkins. And I highly respect Glenntaj's opinion.

Mayo is considered #1 in the world, but Hopkins has an excellent reputation also. I'd go to the one who gave me the first appt. in my opinion.

Good luck,
Please keep us posted,
Billye
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