I'm more than curious to know people's experience's with Dyskinesia - which I understand as the foot twisting and writhing, tip toe dance I do upon coming ON or OFF l-dopa (sinemet or mucuna). For me the beginning of Dysk. signaled the ending of the "honeymoon" period.

Dysk started creeping in after about 2 years of very minimal l-dopa use...and started becoming a problem at about 2 1/2 years...when the on/off phenomena began. DYsk remains the defining and limiting factor in my l-dopa intake.

DOes anyone know what I'm talking about and think it's important? I think there are clues here as to the true cause of PD and should be studied intensly...rather than be looked as an an opportunity for Pharmas to make yet another pill!!

Comments, please. Thanks, Ibby