Quote:
Originally Posted by PolarExpress
4mg is my limit, I've found..My bladder starts doing somersaults when I try 4.5..I was dx'd as PPMS, the progression is mostly cognitive, with numbness in hands and buzzing in both legs..Balance has become more of a problem, slowly but steadily..Still walking though! I had an MRI a couple months ago, and it showed new and active brain lesions..My thyroid went completely wonky on me at about the same time (hypothyroid), going from 1.5 to 19.8 in a matter of a few months..All this sounds bad, but considering alternatives, I'm happy with where I'm at!
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Are your thyroid issues thought to be connected to the MS, or is that seperate? Is the balance related to the MS too, or could that be from the hypothyroid? Are they suggesting that the LDN may have contributed in any way to the hypothyroid?
I jumped ahead in your posting a little . . . but how is it that you have enhancing lesions when you are PPMS? Isn't that rare? Do you have relapses too, ie. are you perhaps PRMS instead?
Did you have a spinal lesion or TM-type attack prior to or since going on LDN?
Cherie
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