I have been dx with SFN. I have been on Neurotin for about 1.5-2 years, can't quite remember when I started. The doc recently added 100mg of Tramdol, but I upped it to 200mg and it basically has no effect, so I'm going back to 100mg until I see him again.

It seems that over the last 6 months, the pain and burning has really progressed to the point that my 3600mg a day on neurontin seems to do little. My butt burns after sitting for about 5 minutes. The burning and soreness is creeping up my arms 2-3 inches now. The pain is moving up my legs, especially on the sides and calf. I often get very bad leg cramps in my calves when stretching in bed. Even if I can get some of the burning to calm down with a few Vicadins (usually 2-4 of the 7.5/750mg pills), there is still major soreness, like someone has beaten amy hands/arms and feet/legs with a 2x4! Last night it seemed to get real bad as it hurt just to pick up my sons small cloth bag during his swim lessons with the strap running across my palm. On drying my hands last night after washing, it felt like I was drying the backs of my hands with sand paper. Shifting my truck tends to hurt the palms of my hands just with the pressure of moving the shifter. Pushing on the clutch with my foot hurts greatly. Walking hurts a great deal. I do have a high tolerance for pain, but this is beginning to drive me crazy. I still can feel the difference between hot and cold though.

How fast does SFN usually spread? Can the pain have days with varying highs and not-quite-as-highs in intensity? Does anyone have a solution for those of us who sit most of the day, for the burning butt problem?

I sit most of the day behind a computer (I'm a tax accountant).