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Grand Magnate
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Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
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Grand Magnate
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
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Quote:
Originally Posted by lady_express_44
Are your thyroid issues thought to be connected to the MS, or is that seperate? Is the balance related to the MS too, or could that be from the hypothyroid? Are they suggesting that the LDN may have contributed in any way to the hypothyroid?
I jumped ahead in your posting a little . . . but how is it that you have enhancing lesions when you are PPMS? Isn't that rare? Do you have relapses too, ie. are you perhaps PRMS instead?
Did you have a spinal lesion or TM-type attack prior to or since going on LDN?
Cherie
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Let's see...
1) They don't really know if the thyroid issue is connected to MS or not..Since it seems to be prevalent among MS'rs, I wouldn't be surprised.
2) Balance issues are MS. My thyroid was under control with meds for 3 years when it decided it wasn't getting enough attention.
3) They are not saying LDN is the cause of anything. They know the thyroid issue was pre-existing.
4) Enhancing lesions was a shocker for me, too (as well as my neuro, I think). I do not have relapses at all, that's what's so weird. My neuro said it could be a "silent" relapse, that it's not common but possible. He is sticking with PPMS dx for now..
5) I have had spinal lesions (C3-C4), but nothing new. Never really had any kind of "attack", just slow, steady progression..
Like I said, LDN has been very helpfull with some symptoms. I'm happy about that because I'm unable to take a lot of the stronger drugs for things like pain, bladder control, etc..
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