Quote:
Originally Posted by JoeMac
Actually Cherie, I am doing a LOT for myself these days, I get bouts that my upperbody does not work and almost goes dead on me but other than that I am in a cog fog and tired a lot but I am doing a lot for us more than a month ago, the thing that worries me is that the lesions on my spine are not going away and probably never will so I fear that i am going to stay this way......will these lesions get better? ty doesn't do much for spinal lesions so how am I going to get better.............How did YOU get better?
Joe
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Joe, that was one part I have never understood ~ the damage is in our spine, yet we have so much fatigue and cog fog going on.

I have concluded that it is because our bodies have been so taxed/stressed, we've gone on overload or something. I really don't know why that happens though.
The lesions will not go away, you are right about that. I think spinal lesions are fairly permanent, but the inflammation definitely dies down. What we are left with is plaque (like scar tissue) on the nerves.
There are two parts to lesions; inflammation and damage. What we want to do is avoid the flare-up to begin with, so that there is no opportunity for damage. Of course we really don't have a lot of control over that, but I think that those of us with spinal lesions might have some; we really need to avoid infection in our bodies at any time!!
Your inflammation is still healing, and you should get better yet. You seem to be past the "I can not live in my skin" stage, and are transitioning to a new "normal". I can't even begin to predict what that normal will ultimately be, but we are almost always left with some amount of challenges for several months. They say we continue to heal for up to two years.
It was actully the fatigue and cog fog that took me out of the workforce. I was lucky that my employer let me keep trying from home . . . but they were only being kind and humoring me. I was not at all ready to give up on remaining in the workforce, so I am very thankful that they let me make that decision/change in my own time.
That was the second attack though, and the odds were against me. I'd had MS for many years already too . . .
All you can do is try, Joe . . . WHEN you are ready to do that. I did that after the first attack, and it wasn't easy, but I found myself eventually.
I wish I could offer you more assurance, but I've personally gone two ways with this, and there is really no way to predict what will happen with you. All I can say is that there is definitely still plenty of hope.
Cherie
PS.
If all else fails, I'd try LDN if I were you. It helped me a lot ...
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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