Hi Cherie,
Every time I read your reply's I say, WOW, I really cannot express how much this is helping me.....THANKS!
I must still have the C-3 lesion that is still active because besides the fatigue, cog fog and numbness, I am still losing use of my arms, it has happened at LEAST 3 times so far and it seems to be that dang C-3 lesion doing it, everything else that is going on in my spine the C-9 and T-1 lesions I thik have died down.......I hope the Ty helps with my brain stuff and I am going to being up the LDN to my neuro and see what she say's about giving it to me...........she DID say that she could not give me steriods because of the pancreatitis, but steriods might not help anyway although when I had them before the 5th day things did seem a bit better and they did stop the pain in my shoulder blade, THAT was the C-3 also, I would love to try them again, but this damn pancreas of mine
Believe me Cherie, I have disability for 26 weeks and if I am NOT better I will NOT go back to work.......
I am REAL curious about that LDN....
Thanks again
Joe
Quote:
Originally Posted by lady_express_44
Joe, that was one part I have never understood ~ the damage is in our spine, yet we have so much fatigue and cog fog going on.  I have concluded that it is because our bodies have been so taxed/stressed, we've gone on overload or something. I really don't know why that happens though.
The lesions will not go away, you are right about that. I think spinal lesions are fairly permanent, but the inflammation definitely dies down. What we are left with is plaque (like scar tissue) on the nerves.
There are two parts to lesions; inflammation and damage. What we want to do is avoid the flare-up to begin with, so that there is no opportunity for damage. Of course we really don't have a lot of control over that, but I think that those of us with spinal lesions might have some; we really need to avoid infection in our bodies at any time!!
Your inflammation is still healing, and you should get better yet. You seem to be past the "I can not live in my skin" stage, and are transitioning to a new "normal". I can't even begin to predict what that normal will ultimately be, but we are almost always left with some amount of challenges for several months. They say we continue to heal for up to two years.
It was actully the fatigue and cog fog that took me out of the workforce. I was lucky that my employer let me keep trying from home . . . but they were only being kind and humoring me. I was not at all ready to give up on remaining in the workforce, so I am very thankful that they let me make that decision/change in my own time.
That was the second attack though, and the odds were against me. I'd had MS for many years already too . . .
All you can do is try, Joe . . . WHEN you are ready to do that. I did that after the first attack, and it wasn't easy, but I found myself eventually.
I wish I could offer you more assurance, but I've personally gone two ways with this, and there is really no way to predict what will happen with you. All I can say is that there is definitely still plenty of hope.
Cherie
PS. If all else fails, I'd try LDN if I were you. It helped me a lot ... |