You are probably right about the upper C lesion being the troublesome one, since your arms/hands are affected.

There have been so few of us that I've talked to, but if the attack gets this severe, there are always clear cognitive/fatigue issues. I have learned to manage my problems with LDN, sleep whenever I need it, and reducing stress. I can still be pretty clued up at times, but definitely not at others. It is very hard to find an employer who is empathetic to this issue!

As far as LDN, there is a stickie on this forum for those of us who use it. It's a long read, but good for one of those insomnia nights.

http://neurotalk.psychcentral.com/thread50240.html

Just be sure that your doc knows you are talking about NALTREXONE, NOT Novantrone (a chemo drug). If you decide to approach him, come prepared with some of the info available on that stickie.

Cherie