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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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YAY Sheena!!
Sheena, I'm soooo glad you posted this and let everyone know. Everyone here, so far, has been supportive of me. (btw, did you get my email the other day??)
Anyhow, I'm glad you have your foot in the door - now we need to get the rest of you there.
I am just about 2 months post treatment (2 months since the last dose)... So far is has been a magic bullet for me. I'm still "recovering" - but not dealing with the MS symptoms barely nearly as much. It's amazing. No, I'm not saying I don't have MS and I'm not saying "cured" quite yet (time will tell on that) - but I will say this - I am improved in a way that none of the CRABs, etc. have done for most people. I also believe that I am HEALING. This isn't just about symptom reduction and a slowing of progression...but I really think this is the closest we have to a cure right now and I will stand by that belief for as long as I can!
A few weeks ago I received the neurologist's report from Dr. Kerr from my initial visit at JH. Man, I was in baaaaaaaaaaaaaaaad shape. It was very difficult for me to read how bad it was. 
I was saying to someone the other day - "this has been amazing because I'm certain that by Xmas I would have been in a wheelchair and now I'm not even needing my cane!" And her response was: "Christmas??"
- I thought she meant that I was exaggerating the situation, that it wasn't nearly as bad as I was making it to be - so I said, "okay, next summer?" She replied - "NOOOOOOOO, it would've been sooner than Christmas even!" I was kinda shocked because even though I was saying how "bad" I was doing - I don't think I ever acknowledged just how bad it was for me.  
Sheena - I am sooooo excited for you - and I hope you get in soon.
I need to finish creating my blog (yes, I've started it!!) - and then everyone who wants to know can learn more about this experience.
While I'm not 100% better - I'm at least 100% better than I was before. (Does that make sense?)
~Keri
ps/Oh, and my hair is growing back!!
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