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Old 09-05-2008, 01:55 AM
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SilverLining SilverLining is offline
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Join Date: Jan 2008
Location: Utah
Posts: 40
15 yr Member
SilverLining SilverLining is offline
Junior Member
SilverLining's Avatar
 
Join Date: Jan 2008
Location: Utah
Posts: 40
15 yr Member
Default "I may have to reverse your diagnosis."

I was diagnosed in June of 2007 and haven't had an MRI since then.

I started out on Copaxone until I was able to get LDN. I've been on LDN since early December. My Neuro KNOWS I wanted LDN but we don't actually discuss if I'm using it because he won't keep me as a patient if I go against his suggestion.

I have already explained in the LDN thread, the wonderful effects that I have had from LDN. However I don't think it occured to me it might slow progression. I think I just felt that was too much to ask for.

With everything going on I just haven't been reachable lately. My poor Neurologist finally emailed me instead.

"If you came into my office today I could not diagnose you with MS. You no longer meet the criteria for an MS diagnosis. Your lesions are smaller and you have less than is required for an MS diagnosis. I may have to reverse your clinical diagnosis. Whatever you are doing, keep doing it. If you continue to progress like this for another year, I may consider finding out exactly what you are doing to use it with my other patients."

How do you respond to that? I was speechless.

Wow. That's all I can say. How in the world did THAT happen?
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dmplaura (09-05-2008), ewizabeth (09-05-2008), Gazelle (09-05-2008), Jappy (09-06-2008), karousel (09-05-2008), Kitty (09-05-2008), LarryLDN (09-05-2008), MSacorn (09-11-2008), Natalie8 (09-05-2008), SallyC (09-05-2008), sheena (09-15-2008), Twinkletoes (09-05-2008)