Quote:
Originally Posted by hkchic
I had my first Tysabri infusion last Thursday and everything went fine - nothing unusual. Then on the weekend, I had extreme weakness in my legs, more than normal numbness in my feet. Instead of using one forearm crutch, I have gone to the wheelchair.
Question - has this happened to anyone else and what was the outcome? I am not discouraged...just a bit frustrated and curious. Thanks for any input!
~Teresa
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While I don't remember having the tiredness and weakness that others have reported, there HAVE been a lot of reports about people having the symptoms you report.
I work nights and go for my infusion after a full week of work, usually on 4 hours sleep or less the day of infusion, so I am NOT a good patient to compare to.
I'm ALWAYS tired!
Most people reported improvement around infusion # 3 or 4. I am not sure whether the whole stress and uncertainty of the decision to go on Tysabri is in play with some of this but as we all know, deciding to change or start a new therapy always has stress involved in it, whether we recognize it or not.
I hope this resolves for you. Please keep talking and let us know how you are doing!
