Quote:
Originally Posted by lady_express_44
I think I've lost track of your story . . . are they questioning your MS dx at this time?
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I'll give you the abbreviated version:
1. 2003: Dr. Flip Flop--I don't know if you have MS, you have an elevated IgG index and oligoclonal banding, you have a thoracic lesion, I don't know if you have MS
1a. 2003-2006: MRIs and all testing done at trauma hospital MRI center
2. 2003: Dr. MS Specialist, Thomas Jefferson, Philly: You have probable/possible MS but I won't give you dx because they'll only treat the dx and not other things
3. 2003-2005: Dr. Flip Flop: You might have MS, you have MS, I want you on meds, I don't want you on meds, I don't know if you have MS and never said you had MS, I want you on meds, I don't know if I'm comfortable with a dx or meds see my partner
4. 2005: Dr. Decisive: I see lesions on your 2005 MRI, you have a thoracic spine lesion, I'm dxing you with MS
5. 2005-2006: Dr. Decisive: two exacerbations, two IVSM rounds
6. 2007: Dr. Decisive, MS Specialist, gets recruited to Cleveland Clinic for MS education department
7. late 2007: I try to get new neurologist at Johns Hopkins
8. January 2008: Dr. Researcher: your 2005 and before MRIs and testing are crap, I see no lesions on those MRIs, your 2007 MRI is better--I see two lesions but they're probably artifactual and in your corpus callosum, you have transverse myelitis
8a. Dr. Researcher: repeat all tests except SSEPs
9. January 2008: Dr. Researcher turns out to be only consult and NOT treating neuro
10. try from January 2008 to end of July 2008 to get treating neuro at Hopkins--finally succeed
11. August 2008: Dr. Been Recruited by Facility in Texas: I see one lesion on your 2005 MRI (no mention of 2007 brain MRI), dx: probable/possible MS--clinically isolated syndrome and if see another lesion on brain MRI, dx w/MS. See doc to whom I'm referring you in 4 mos. for repeat MRI and visit.
12. August 2008: Dr. Neuro #6--I have appt with in December 2008. Who knows what HE will say about testing and or MRIs
So that's the story. As far as I'm concerned, I'm waiting to see what Dr. Neuro #6 says and I have MS. There have been so many back and forth dx, no dx or change dx things that I'll stick with the dx tentatively until I get the final(?) opinion from Dr. Neuro #6. He could come in and say, Yes, I agree with Dr. Decisive--there ARE two lesions and by the way, I see them on your 2007 and no, they're not artifact.
Cripes..... reasonable neuros can disagree, but that is ridiculous. And radiologists haven't seen anything on my MRIs.