Hi Starfish and welcome to NeuroTalk!
Wow, you've had quite a bumpy ride. I'm not familiar with dysautonomia and wasn't quite sure which forum to recommend to you. I looked it up and it has such varying symptoms it sort of relates to just about all of the forums! Maybe someone else will be along in a little bit who knows something about it and can direct you.
Anyhow, glad you joined us and hope you can find the answers you're seeking. Welcome!!